BY Caroline Bartle, CEO 3SpiritUk
Many individuals do not receive the post diagnostic support that is needed. Finding affordable and sustainable post diagnostic support has been a challenge in the UK and waiting lists have been impacted negatively since COVID-19. Lack of funding and problems with integrated services are some of the many barriers to good post diagnostic support.
The research shows clearly that good quality post diagnostic support is required to provide people with the information, resources and support that they need to live as well as possible with their dementia.
So, what does good quality post diagnostic support look like?
- As a basis, this should include how to manage symptoms but should also include how to maximise on strengths and abilities.
- It should also include how to manage and maintain cognitive skills. This might include offering Cognitive Stimulation Therapy (CST).
- It should also include how to keep connected with existing networks, people who are important but should also include information on new support networks. This might include peer networks where a person can share insights, experiences and strategies with others going through similar situations.
- It should also include things like practical support, specifically where a person has care and support needs.
- It should also include how to plan for the future, including making legal provisions.
Our ‘Still My Life’ framework attached is a great outline of the things a person can do following a diagnosis. We co-created this in collaboration with people living with dementia.Follow Us